Saturday, November 21, 2009
. . .. .. . . . . .Thanksgiving: Hard Work
I am so grateful that my recovery has allowed me the chance to dig in and work. There is something wonderful about putting in a day's work, whether you are at a job, digging in dirt in your yard, doing projects, watching your children or whatever your task may be. Be grateful that you have the strength, energy and abilities to work! It is truly a blessing, one that not all my friends get to enjoy at this stage of their lives.
Trust me, it is better to work hard and collapse into bed at the end of the day, than lie in bed all day, unable to do the things you so desperately want to do. So bring on the blisters, sore muscles, backaches and all...it means I worked hard today, and that is a blessing!
Friday, November 20, 2009
. . . . . . . . . Thanksgiving: Listening Ears and Tears
It is probably good for me to "have" to do my thanksgiving list today. The last 24 hours have been somewhat frustrating and disappointing for me. I had a doctor's appointment yesterday at the University of Utah Hospital. It was a 6-month follow-up from my first craniotomy. I had a hearing test done, followed by the appointment with Dr. Shelton.
I had an enjoyable ride there with Larry, which is always a highlight for me. But, the appt itself left me with very mixed emotions. My hearing has improved a little, which I knew and am very grateful for. However, my paralysis isn't improving at the rate "expected". For my condition, 90% of the improvements to my facial nerves will likely come within the first 12 months from the initial paralysis. So, this time, instead of saying "I am totally confident you will regain all your facial movement", the tone changed to "here is what we can do if you don't get better".
The list of alternatives included more surgeries for my eye (either a larger weight in my eyelid, or a spring-loaded spring in my eyelid help it close. The latter would have to be performed in Los Angeles.) and potential surgery for my nose. I still can't breathe well out of my nose, but there is a procedure that can take cartilage from my ear and implant it in my nose to help my breathing.
It is good that their are options, but sometimes I don't want alternatives, I just want to get better.
After my appt, I was disappointed and frustrated. However, today I find myself feeling grateful that I have such wonderful family and friends who allow me to vent, cry and feel frustrated. They listen to me without judging and help me keep perspective. They know who they are, and I appreciate them more than they know.
It was also wonderful to see Dr. Shelton and Dr. Orlandi again. They have done so much for my care, it is hard to see them and not throw my arms around them in a big thank you hug. (I did ask Dr. Shelton for a hug. :) Still so much to be grateful for...
Thursday, November 19, 2009
Thanksgiving: Friends, Neighbors and Blog Readers :)
I have always been fortunate to be surrounded by wonderful people. I love meeting new people, making new friends and enjoying others. At this time in my life, your friendship has been even more important.
Today is the perfect example. I have a 6-month follow-up appointmet with Dr. Shelton today, as well as a series of hearing tests. My neighbor and dear friend, Annette, is watching Daven while I am gone. Casen is going to Michelle's house (who is also his amazing preschool teacher). My father-in-law, Larry, is driving me to Salt Lake for the appointment (though I had so wished to be able to drive myself by now). What would I do without all these angels? Every week it is like this. Cami H. helps out with the kids, Els send me daily uplifting messages and/or food, Jenny does my hair and dozens of friends and neighbors call, email or show up to check on me.
I am so grateful for all of these wonderful "saints"!
If you are reading this, then you, too, are on my list today. I am so thankful for you, the "readers", but known and unknown, for your love and prayers. Nearly every week I receive emails from people I don't know, often who have been following my story for months. Your thoughtful emails, notes, prayers and support are so uplifting to me! You inspire me and help keep me going (and posting). Some days I wonder if I ought to keep up the blog or just "go private" again. But, nearly every time I feel that way, one of you posts a comment or sends me an email. Your support truly does help me push on, one day at a time!
Thank you, one and all, for everything you do. You are my heroes.
Wednesday, November 18, 2009
Thanksgiving: Scars and Side Effects
Yesterday I had a very productive day, but it was also very long. By the end of the day, my body was literally giving out on me. By the time I drove home from the Church at 7:30pm, I could barely walk, see or sit. Once at home from all the day's activities, I climbed into the tub to relax before bed. While there, I noticed the scars on my stomach and leg, where they removed fat to "relocate" to my brain in an attempt to plug my spinal fluid leak. These scars are not "attractive" in a normal sense, but I found myself feeling oddly grateful for them.
These scars, along with those on my head, and even my facial paralysis, are daily reminders of the miracles in my life. These are present because I am still here! My life is truly a miracle, as are the blessings I've experienced because of my trials. I may not always "appreciate" the scars and side effects, but I am always grateful that they remind me of my Savior and His love for me!
What are you grateful for today?
Tuesday, November 17, 2009
Thanksgiving: The Women in My Life
What a treat it is to be a mother, adaughter, a sister, an aunt, a granddaughter, a daughter-in-law and a friend. It means I get to be associated with wonderful, amazing women!
My mother and sisters are my dearest girlfriends in the world! I am so grateful that we are family, and friends. My mother is an incredible example of unconditional love, selfless service and unending friendship. She has helped our family more this year than I could have ever imagined possible. My sisters give me strength, let me vent :), listen to me, buoy me up, help me have fun and let me be me! I love them!
This is lovely Kristi, surrounded by some of her great men. :)Beautiful Tami, enjoying birthday flowers. :)
My amazing mom, Sherri Kay Ketchum Orgill, a true example of motherhood!
My daughter, Lindi, is very much a little woman. :) She is the sweetest girl, and is a true example of love. She is always doing kind things for others just because she enjoys it. :) She has a soft, quiet demeanor, but radiates love and warmth. Love this little lady! Love my little Lindi Lady!!
My mother-in-law and sister-in-law have been a second family to me, but they have never felt like "second place". From the day I met Kay, she welcomed me into the family with a hug and has been giving me love ever since. It took no time at all to feel like I fit in. My sisters-in-law all live far away, but I am so grateful for them, their love, support and fun ideas! (Imagine our surprise when we opened a 4th of July package and found "fire flies" shipped all the way from Indiana, just so my kids could experience those fun little lightning bugs!!)Wish I had recent pics of all of them!
My father-in-law and mother-in-law, Larry and Kay Brown. Wonderful people whom I love dearly!
My grandmothers are so special to me. Though I have only one living grandma, I love them all so much. I have learned so much from them and continue to pray that I will be able to use their examples to strengthen me and guide me in my life. Grandma Ketchum is a wonderful woman of service and love. :) My Grandma Lisenbee is still my strength and now, perhaps my guardian angel, too. Miss you, Grandma. My Grandma Ketchum, visiting me in the hospital.
Grandma Lisenbee, at her 90th birthday celebration. She passed away at the start of this difficult year, on January 17.
I am also so thankful for Tolan's sweet grandmothers, all of whom are gone now, but who still play an important role in our lives. We very much miss Grandma Pringle, Grandma Corry and Grandma Kari Pringle, whom we look forward to meeting in heaven some day. Grandma Maxine Brown Corry, a pillar in her family and community.
Thanks to all the beautiful, amazing women in my life! My dear friends, I love you all, too. Thank you for your love and support. All of these women give me strength, hope and are examples to me! I am thankful for each of you!
Monday, November 16, 2009
Thanksgiving: The Men in My Life
Day 1: I am thankful for the men in my life!
I feel so blessed to be surrounded by REAL men, who know how to love, care and sacrifice. Most of them don't hunt and they don't even spend hours at a time watching sports, but they are real men who make life wonderful and good.
Yesterday three of my four brothers came to visit my family. What a treat! I love that they want to spend time with me and my family! My children adore the "uncles" and we all had a fun time together. It was especially wonderful for me to watch my husband and sons with my brothers.
Friday, November 13, 2009
6 Months of a New Life
Through it all, the only thing I can really say, is that we have also been enveloped by the arms of God, wrapped in His love unlike ever before. We have truly had miracles, and because of those miracles, I am here today. Our faith is stronger, our love is greater, our relationships are more solid. We know our Savior more. I know my Savior. I know that He understands me and my struggles like No One Else can. For He was with me on the long excruciating nights in the hospital, when the rest of the world was asleep. It is this love that fills my soul and gives me the strength to fight on, one day at a time. I can honestly say that I am grateful for the events that lead me to this time in my life. My faith has been tested, but I know now that it has also been strengthened.
My hope and prayer is that we can all find strength and faith in the Lord so we never have to fight our battles alone. It is much easier to stand with Christ's arms holding you up.
Wednesday, November 11, 2009
Plugging Along
I am still amazed at the things people say and do when someone near them is a little "different". The stares are normal for me now, but the comments still surprise me. I am grateful for the kind comments, like the lady at Costco who told me she liked the artwork on my patch. :) I am glad the little boy at lunch had the courage to come up to me and ask me about my patch, for then I was able to show him my eye and explain that I am not scary, nor should he be afraid of something different. His father (I assume) was kind and let him ask all the questions he wanted. I appreciate that. I would much rather let people ask questions than have them rush by, avert their eyes, pretend they don't see, or discourage their little ones from bothering me. Curiosity is normal and honest questions and answers are better than ignorance and ignoring.
Despite my eye, I am getting out a bit, at least enough to keep me from getting stir crazy at home all the time. Today I went to my favorite local spot, the Bombay Grill, and had lunch with my friend, Ryan. We used to work together and it was wonderful to catch up and visit. Daven kept me busy (as always) as he jumped on and off the chairs, had to "go potty" numerous times, and used the straws to splash water on the table. He is the sweetest little boy in the world, and his smile melts my heart. He is, however, very two years old and his adventures are sometimes more than I have energy to handle! (Remind me never to leave a 2-liter bottle of rootbeer out in the kitchen EVER again!) All in all, lunch was great, the company was even better and life continues to be wonderful.
Tonight I went to Parent Teacher Conferences at my kids' school. My kids are so good...smart, kind and hard working. Some may be a little talkative (yes, they get that from me), but they are such blessings in my life! They help me so much, from steadying me when I am off-balance, to doing extra work around the house, to praying for me every day. They are wonderful!
Friday marks the 6 month anniversary of my first craniotomy. Gulp. Wow, how life has changed this year. Hard to comprehend it all. Tears still come, but thankfully, there are as many good tears as sad tears, and more often than not, I feel blessed and grateful for ALL of my life!
Oh, and just wanted to tell our dear friends, the Rhoads, how much we love them!! In this month of Thanksgiving, there are few things to be more grateful for than faith, family and friends, and they are some of the best friends in the world!! Love you guys!
Monday, November 9, 2009
Nights and Lights
That night we had a fun dinner with our good friends, the Baileys. We went to Gray Cliff Lodge, in Ogden Canyon, and had an enjoyable dinner, complete with all the fixings and yummy dessert. It was great to spend time together and visit with the Baileys. I think we are both amazed at all this last year has brought to our family. Perhaps it will be smoother sailing this next year, but if not, at least we are getting better at navigating through the storms.
Yesterday we enjoyed a great day at church, and I enjoyed another church meeting after ours, at which my aunt Celia's kids played their violins and some family friends spoke. It was a wonderful meeting and I truly felt blessed to have been there and felt the Sprit of the Lord. That evening, Celia, her kids, and friends, the Nguyen family came over for dessert. Ahh, dessert is one of my favorite things, and sharing it with wonderful friends and family makes it even better. Truly, another blessed weekend.
Lights: For several days now, I have been having many issues with my eye. In some ways, my right eye seems to be getting worse, or perhaps I am trying to use it more so it only appears worse. In either case, I am having an extreme sensitivity to light. I am nearly blinded when I get into sunlight or bright lights of any kind. It affects both of my eyes until I can cover up my right eye (or hold it closed). I don't know if this is because the paralysis doesn't allow some of the eye functioning to take place, or if there is another cause. If anyone knows anything about sensitivity to light, please pass along the info.
Normally this would simply be an inconvenience at best, but with my sight and perception already suffering, this sensitivity is causing me real problems. I don't drive much these days, but the other day I was out on a busy road near my house, when I turned a corner and the light got in my eyes. Immediately I was nearly blinded and I was afraid I was not going to make it safely down the road. Scary. It happened again when I came out of a building and into the sunlight in the parking lot. Hmmm, don't know what is going on, but I do know that my eye seems to get "tired" and worn out much earlier in the day than it used to.
Despite my questionable eyesight, life remains very good. My children keep me hopping and my husband keeps me sane. My friends keep me informed and feeling loved and my neighbors rescue me when things don't go right. All in all, you should (no one is perfect though, right??) hear no complaints out of me!
Friday, November 6, 2009
Shadow Dancing & Celebrating
Yesterday was a near perfect day! Heavenly Father has indeed blessed us this week as we have had the most glorious weather. It was 70 and sunny and you could smell the crispness in the air, see the colors on the trees and feel the crunching of leaves under your feet. A perfect day for a walk by the river with my boys! We spent over an hour walking along the river bank, skipping stones, throwing sticks, and going exploring! We sang songs, made up adventures and discovered beauty.