We had hoped to go home today but instead Jodi spent the entire day in bed due to the spinal headaches. She couldn’t even lift her head off her pillow to eat or drink much. This afternoon Dr. Couldwell came by to check on Jodi. He had her lie on her side and tilt her head down and it didn’t take long for CFS to begin dripping out her nose. This probably explains the continued spinal headaches. Jodi and I were very disappointed as it feels like we’re back at the point we were before her second surgery. He explained that it could be fluid that built up in the nasal cavity before the surgery Monday and hasn’t had a chance to leak out since she has been on her back since then. However, there is a good chance the leak in her head continues. As he explained, a sure way to solve this is to plug the eustation tube by either going in through the ear or up through the nose. However, this would permanently plug the ear and pretty much take out the hearing in that ear and at Jodi’s young age that isn’t a great option. He also mentioned that he hasn’t had any patients where that ended up being necessary since the earliest years of his career. Of course, nothing about Jodi’s case has been typical… Dr. Shelton also stopped by and he said in 25+ years he has only had four patients where plugging the eustation tube to stop a CSF leak ended up being necessary. So… that’s where we are at this point. Jodi and I were very disappointed today. Jodi cried for about an hour. We’re going to wait a couple days and see what happens and clearly we won’t be coming home as soon as we had hoped.
This afternoon and evening Jodi had some wonderful visits from friends including: Jodi Carlson and Connie Burton, Sister Tate and Sister Read from the Relief Society, Aunt Deanne and Steve, and also Tolan’s boss Dave Siebert. All of these visits were uplifting bright spots on an otherwise difficult day. Also, thanks to Tamee for yet another pick-me-up and to the Hanneman family in Hawaii for the visit, thoughts and well-wishes.